Emerson had a recheck with his cardiologist yesterday. Echocardiogram is excellent! His mitral valve numbers are just about the same as post op values. Mitral valve pressure gradient is down from 12-14 torr to 5-7 torr. His blood pressures and EKG are good. The small amount of pericardial effusion has resolved. Dr. Weinhouse is very very happy with his recheck, as we ALL are! He will continue to communicate with his surgeon, Dr. Bove. Restrictions are no lifting anything over 5 lbs for 6 weeks, no running, jumping or gym for 6-12 weeks. He can go back to school when he is up to it. It's still less than 2 weeks post op, so we will be working on things at home trying to get him caught up. When Emerson is stronger he will start back half days.
Emerson has been mainly in bed except for getting up a few times on Thanksgiving, and to leave the house for his recheck yesterday. The most recent concerning things are the development of what appears to be choreoathetoid movements. Emerson has significant uncontrolled movements of his left arm and left leg, and sometimes his head/neck/face. We are making an appointment with a neurologist and his pediatrician. I am wondering if these movements are also hindering his weight gain, as I'm sure he's burning more than normal calories with these movements.
Cognitively, Emerson seems great. He hasn't been sleeping enough (still up at night with a cough, which seems to be improving since surgery) But while he is awake he is happy, seems to be able to focus on games and puzzles, and has enjoyed visitors.
We are working hard on his recovery, hoping he will gain weight, these uncontrolled movements will subside, and he will continue to get stronger! Thank you everyone who has helped, who has prayed, thank you GRANDPARENTS who have a special connection with their grandson and also help us as parents. Please pray for all sick kids, for good surgical outcomes for heart kids, and for little or no complications from by pass. What these kids go through is amazing. Emerson is one tough incredible kid! Love to all, hugs hugs hugs--
Jen
Thanks for the update! Glad he is doing well. Hopefully the neurologist figures out his uncontrolled movements and gets them under control. Still praying for you!
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