Emerson has had uncontrolled movements of his left side. It is primarily his left arm which rotates at the wrist and will kind of "fly upwards" if he tries to hold it still at his side. He will persistently and rhythmically kick his left leg. Emer's head/neck and speech is also somewhat affected, as he moves his lips and cheeks/tongue as well. We have been in touch with his pediatrician, the cardiac group at UofM, and saw a neurologist yesterday hoping to pinpoint why he is having these symptoms as well as determine what treatment may help.
Everyone is in agreement that these are post op symptoms that can occur in kids that have had by-pass procedures. The neurologist was very thorough and great with Emerson. She confirmed that the MRI of his brain and cervical spine shows no obvious strokes or lesions, but we will get the official radiology report on Monday. Over this weekend Emerson has started on Cogentin, a medication to treat his dyskinesia. Right now, we are hoping that #1, the medication helps his symptoms. #2, we hope that his symptoms will eventually disappear. It could take weeks or months. The neurologist is hopeful that his symptoms will eventually resolve, and said they could go away as fast as they came on. The good news is, his symptoms do not seem overall to be getting worse, and it doesn't seem progressive at all.
I will add more details later but wanted to get this news out! Thank you everyone for all the prayers! We are all super thankful for all the support for Emerson and he is getting stronger and stronger. We will do a trial back to school for a few hours a day this week! Love to all.
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